HeLEX seminar: Health data - what's new in the law?

17 September 2018
HeLEX researchers discuss the implications of recent changes to data privacy laws in Australia.
Technology is transforming healthcare research and delivery. But is the law keeping up? 

A new research team at Melbourne Law School’s Centre for Health, Law and Emerging Technologies (HeLEX) discussed the legal challenges and opportunities of collecting and sharing health data as part of the Victorian Comprehensive Cancer Centre's Monday Lunch Live seminar series. 

Dr Carolyn Johnston and HeLEX team members A/Prof Mark Taylor, Dr Jessica Bell and Dr Megan Prictor shared academic advice, best practice insights and potential implications of recent changes to data privacy laws in Australia and overseas.

Key discussion topics included: 

A framework for the secondary use of data from My Health Record
The start of the Notifiable Data Breaches Scheme
The far-reaching effects of the European Union’s General Data Protection Regulation

As data science is a rapidly developing field, the development of responsible, proactive and agile regulatory frameworks is essential to ensure the ethical collection and use of health information. 

Members of the HeLEX team collaborate with Stem Cells Australia’s Engagement, Ethics and Policy Program, led by Associate Professor Megan Munsie, to explore regulatory implications of stem cell research and its applications. 

A recording of the HeLEX lecture can be accessed here.

Dr Megan Prictor also recently discussed the privacy implications of the government's proposed My Health Record and other medical records in "The Conversation".